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If
you would like to add your name to this contact list, please go
Name: Dick Shivers
Email: dtshivers@home.com
Age: 59
Country: Des Moines, Iowa, USA
IBD: UC
Surgery: Kock Pouch
More Info:Had the surgery in 1979 and am getting along fine. Do my own yard work and travel so the pouch has not limit my activities. Will be happy to discuss my experiences if someone has questions.
Name: Bill Throckmorton
Email: billyjoeray@msn.com
Age: 45
Country: Ventura, California, USA
IBD: Crohns Colitis
Surgery: Kock Pouch
More Info:I've had crohn's/colitis since the age of twelve [1969] and finally had enough [pain, etc]that I decided to have surgery in 1976. I was lucky to have a choice between conventional ileostomy or ileostomy w/koch pouch, have had it for 25 yrs and so far no problems except occasional bouts of pouchitis and illeitis. Hope to hear from other ostomates.
Name: Sue Bursey
Email: smbursey@unidial.com
Age: 42
Country: Westminster, Maryland, USA
IBD: UC
Surgery: Kock Pouch
More Info: I had twins in 1988 Needed invitro(Pouch in the way).
My Kock's Pouch is almost 21 years old, valve problems just started along with pouchitis. Possible near future remaking the valve. Looking to talk with someone who has had a new valve constructed. Also what is the differences between Koch pouch & BCIR?
Name: Amy
Email: amyandm@worldnet.att.net
Surgery: Kock Pouch
IBD:: UC
Age: 29
Country: Seattle, USA
Name:Susan
Email: seh@rmcurtis.com
IBD: UC
Surgery: Kock Pouch
More Info: Has anyone had a stone in their Koch Pouch? If so what did you do about it. Have you had any problems getting health insurance on your own?
Name:Bayla
Email: miswryte@better.net
IBD: UC
Surgery: Kock Pouch
Age: 45
ICQ: 25979944
Country: Toronto, Canada
More Info: I'm looking to find friends in my city who are looking to meet and discuss similar interests, etc. I have had an ileostomy (conventional first since 14 years old -- converted when I was 29). I would like to know if there are other ileostomists in Toronto who would be interested in getting together. And, I'd also like to know if there are any chat lines (preferably Canadian) that allow people with stomas to talk.
Name: Robin
Email: garps@aol.com
Surgery: Kock Pouch
IBD:: UC
Age: 41
Country: Michigan
Name: Karen Olson
Email: K4VIDEO@aol.com
Surgery: Kock Pouch due to bladder cancer
Age: 40
Country: California, USA
More Info: I am producing a video for new ostomates...urostomy first and later a colostomy tape. They are not like the depressing medical videos I have seen. I would love to hear real facts about dealing with a pouch-internal or external- for my scripts. Thanks - lovely page...first contacts I have ever had with other folks in the same boat and I have had my pouch since '84!
Name: Marilyn
Email:SCGarf@aol.com
Age: 57
Country: South Carolina
Surgery: Koch Pouch