Name: Jonathon Email: jonswans@aol.com Age: 25 Country:Wales, UK IBD:UC Surgery/b> Ileostomy More Info: I would love to chat with anyone who has experienced 'J Pouch Surgery'. There is nothing quite like getting it from someone who has been there and got the t-shirt
Name: Brian Heisler Email: brianheisler@hotmail.com Age: 35 Country:Pepperell, Massachusetts, USA IBD:UC Surgery/b> J Pouch More Info: I had symptoms for years but was too busy and embarassed to deal with it. Finally it got bad enough and I had the Parks procedure done in August of 1999. The surgeon was Peter Mowschensen, in Boston's Beth Israel. No complications once I got out of the hospital(30 days) and I just avoid nuts and seeds totally. Supposed to avoid chocolate and caffeine, but I can cheat in these areas if I plan carefully. Only about 3-6 trips per 24 hrs now, quality of life is 100% better now. Don't miss my colon at all, and I can do everything I couldn't do the past 7 years or so. Life saver!
Age: 33 Country:Michigan, USA IBD:UC Surgery/b> J Pouch More Info: Just found out I had UC in April of 2000. By November of 2000 I was in the hospital with no other option but the complete removal of my colon. Now I am just home yesterday from the second phase of the J-pouch surgery and am just looking for other people's experiences. My husband is very suportive but it would still be nice to hear from other people who have had or are going to have this surgery. Would like to talk to anyone who needs support or that we can support each other. God bless.
Name: Keren Email: keren.moses@stanfordalumni.org Age: 26 Country:Illinois, USA IBD:UC Surgery/b> J Pouch More Info: After 4 months of UC with no remission I had my j-pouch done in three steps, finishing in May 2000. I'm pretty happy with it, despite a few problems, and would be happy to talk to anyone considering a j-pouch, or any current j-pouchers.
Name: Maria Email: maria@btinternet.com Age: 36 Country:London, UK IBD:UC Surgery/b> J Pouch More Info: Approx 4 years with ileostomy, then J-pouch 18 months ago, hard at first but great now, almost like before UC. Younger brother had same done. Older siblings didn't get this, why is that!! Became pregnant with second child while with ileostomy - no problems whatsoever - except when giving birth midwife tugged at ileostomy bag saying 'how do I get this off!' Well you've got to laugh.
Did have anal irritation with J-pouch for a year before Immodium/loperamide capsules suggested, did the trick. St. Marks, London, great place to get your surgery done!! Prof. Nicholls brill, as are the stoma nurses. Here if can be of any help at all.
Name: Darleen McDurmont Email: jmcd@means.net Age: 35 Country:Winthrop, MN, USA IBD:UC Surgery/b> J Pouch More Info: Hello, this is Darleen's husband. My wife had surgery week ago and I want to do everything I can to help her accept this. She has had ulcerative colitis since 1989. She was suffering so badly the last 8 months that none of the drugs seemed to be helping. The surgeon said she had only 4 inches of good colon left so she had surgery. Any advice or help on the subject would be comforting to us. Thank you....James McDurmont
