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Name: Marsha Herman
Email: marira@dellnet.com
Age: 54
Country: New York
Surgery: Ileostomy
IBD: UC
More Info: I have a month to decide whether to have J-pouch surgery. Am not doing well on the pouch. Feel that I'm too old for J-pouch surgery. Any comments?

Name: Theresa
Email: TLB513@aol.com
Age: 41
Country: Lockport, NY, USA
Surgery: Ileostomy
IBD: UC
More Info: I have had an ileostomy for 22 yrs also. I have 2 children 17 and 14. I kick box, work 3 jobs, dance, date, tole paint and just about anything else that comes along.

Name: Alice
Email: alicemarie@jps.net
Age: 46
Country: Fair Oaks, CA 95628
Surgery: Ileostomy
IBD: SLE (Lupus)
More Info: I had Colostomy first and 6 years later had it changed to an Ileostomy.

Name: Ashley Robinson
Email: Oddleeven@AOL.com
Age: 18
Country: U.S.A.
Surgery: Ileostomy
IBD: CD
More Info: I have had symptoms since age 5 they did not know that I had Crohns till I was 9 years old. At the age of 9 1/2 I had my surgery. I never saw a E.T. nurse till I was 15. I only saw one then b/c I had a unknown skin condition called Pyoderma.I have had this skin condition for the past 4 years. Only in the past few months have I been open with two of my friends about my pouch.I call my stoma George after the Buggs Bunny cartoon where the monster finds Buggs and says" I will love him, hugg him, squeeze him and call him George."

Name: Janet Paquet
Email: Joelle@lara.on.ca
Age: 30
Country: Canada
Surgery: Ileostomy
IBD: CD
More Info: Hi, I've had Crohn's disease for 12 years . I had my ileostomy done 3 years ago and wouldn't trade it for anything. I am amazed at how many things I missed when I was 'running' to find a restroom. Having an ileostomy has been a real blessing.

I am also a mother of a very active 3 and a half year old who after she was potty trained wanted a 'bag' just like Mommy. Would love to hear from anyone wishing to talk. Thanks.

Name: John Bennett
Email: bennettjohnr@hotmail.com
Age: 38
Country: Northern Ireland
Surgery: Ileostomy
IBD: UC
More Info: I had my ileostomy in March 1998 after having UC for only three months. While I have had little difficulty, physical or psychological, with the ileostomy I have not yet managed to get a handle on those three months prior to surgery when I went badly downhill in such a short period.
I still have some bits left and the tail end has not been closed up yet. What's left seems to have UC which sometimes flares up. On a daily basis there is some discharge of blood and when it plays up there are the cramps of bygone days. I'm not too happy with this and can't make up my mind when to go for surgery.

Name: Drew Michaels
Email: drewmichaels@yahoo.com
Age: 57
Country: Lincoln
Surgery: Ileostomy
IBD: UC
More Info: Have had ileostomy since 1977 and have brought up a family and coped with a stressful but very rewarding career as a teacher. If I can help reassure anyone please let me know as I consider myself an "old" hand now especially on the subject of dehydration bouts and late development of arthritis which my surgeon warned me would develop as long ago as when I first had the op - now 22 years later he has been proved right!!

Name: Kathleen
Email: CntryDnc93@aol.com
Age: 48
Country: USA
Surgery: Ileostomy
IBD: UC/Indeterminate Colitis
More Info: I am a 48 year old woman, married. I've had my colon removed 7/96 with my rectum intact due to UC. I have 2 daughters. I have an end ileostomy. I have decided not to have the j-pouch and feel like a minority. I was told I had to have my j-pouch surgeries in 3 surgeries. But after reading and hearing about the complications with the reversals, I decided against it. I experience great health and am enjoying life. I do NOT want to risk that. Or the risk of getting any other complications from more surgery. Because of complications after my colon removal and 2 other surgeries because of them, this contributes to my decision. I have put my story in a site for anyone who's interested in reading it.

Name: Anna
Email: gingerpeachtea@hotmail.com
Age: 35
Country: USA
Surgery: Ileostomy
IBD: UC/Indeterminate Colitis
More Info: I had emergency ileostomy surgery in 1996. I have just my anal canal in case I can get "reconnected." I have a female fistula as well.
I am a Mother of two. My daughter has ulcerative colitis.

Name: Alan
Email: aa_scot@yahoo.com
Age: 42
Country: Scotland
Surgery: Ileostomy
IBD: Cystic Fibrosis
More Info: I'm a gay man living with my partner. I had my ileostomy as an emergency in April 1999. I had no previous bowel disorders. Now I'm coming to terms with the surgery, my stoma and the changes to my lifestyle this has caused.

Name: Sean
Email: Whalerfan@aol.com
Age: 24
Country: USA
Surgery: Ileostomy
IBD: Crohns Colitis

Name: Sis
Email: sisk@theriver.net
Age: 42
Country: US
Surgery: Ileostomy
IBD: CD
More Info: Just like to communicate with someone who knows the inconveniences and pain of having Crohns and an illeostomy.

Name: Donna G. Miller
Email: dmg4444@yahoo.com
Surgery: Ileostomy
IBD: CD
More Info: My ostomy surgery was 9 years ago.

Name: Mel
Email: sunbyrner@go.com
Surgery: Ileostomy
IBD: ???
More Info: I have had an ileostomy for nine years and am quite comfortable with it... except when it gets noisy :) I would be happy to hear the experiences of others.

Name: Adam
Email: Adam, please email me your email address so that others may contact you. Thanks, Shaz
Surgery: Ileostomy
IBD: UC
More Info: Hello, I have had an ileostomy since November of 1998. I am currently starting my first year of medical school. Having the ostomy makes me psychologically uncomfortable, but it is better than suffering from ulcerative colitis, and having to take all of the various toxic medications used to treat that illness. So far, I am doing well. I lift weights on a regular basis, and am very into exericise and fitness. Look forward to speaking with others who have had this surgery. All the best to you, -Adam

Name: Nancy, aka: Shuffles
Email: ntbeeke@hotmail.com
Surgery: Ileostomy
IBD: UC
More Info: I kept thinking and hoping and wishing that somehow things would go back to "normal". When I finally came to grips with the fact that "normal" simply wasn't one of the options and dying of colon cancer was...well, that clarified things alot. If anyone has questions or anything feel free to e-mail me. I check it pretty often when my daughter, "I-am-NOT-addicted" is away from the comp' for a few minutes...

Name: Stuart Daley
Email: stuartdaley@yahoo.co.uk
Surgery: Ileostomy
IBD: CD
More Info: Had Crohn's since I was 15, but it took a visit to my Mother in the United Arab Emerates to get it diagnosed (so much for the N.H.S.) Back in England they left it alone for so long that I had to mave most of my colon removed. After 7 years of dashing to the loo I was given an Ileostomy, and then had to have it redone and severe problems.

Since 1990 I've been clear of problems (apart from a couple of blockages - one on my honeymoon!), gotten married, had two children (well, my wife had them - I had the hard task of feeding her ice throughout the delivery), done parachute jumps, bunjy jumps, put on a lot of weight (I'm now 13.5 stone), and generally got on with my life.

This month (August) I'm due into Gloucester Royal to have my stoma refashioned due to complications.

If anyone wants to e-mail me I'll try to help. The biggest help I even found was talking to people who've had an ostomy and then gotten on with their lives. The worst thing was talking to people who gave in to their IBD - they all sound like Marvin the paranoid android from HHTTG.

Name: Whitney
Email: whitney_richey@hotmail.com
Surgery: Ileostomy
IBD: UC
More Info: I'm 14 years old and I live in Alaska.

Name: Keith Whitwell
Email: Keith, please email me your email address so that others may contact you. Thanks, Shaz
Surgery: ??
IBD: ??
More Info: Well, I have had my stoma for about 5 years now, at first I didn't want it but I had no choice. And ever since that day I gave up on life. In turn I have had 2 more surgeries, one of the doctors took out my rectum. I hated myself, At one time I was happy (before surgery) and because of this I lost my wife and the three nephews that I really loved. I had a great job, a nice life, but I couldn't deal with it. I drink and smoke pot and have broken the law many times. I don't go out and hate myself. Although I now have a girlfried, we fight and I treat her bad, because I think she hates or doesn't understand me.......HELP........

Name: Irma
Email: Irma, please email me your email address so that others may contact you. Thanks, Shaz
Surgery: Ileostomy
IBD: ??
More Info: Had surgery July 2, 1999. Am a real newbie to all of this stuff. I want to know if you shine a flashlight in your throat can you see it come out your anus?(Just a joke my friends torture my with).

Name: Evelyn Dawson
Email: pinkysam@greatlakes.net
Surgery: Ileostomy
IBD: ??
More Info: I thought that sinceI have had an ostomy for 40 years that maybe I could give hope to many young or old people. I did have 2 children after the surgery. My husband is deceased but I do have a live in boyfriend. My husband and I were married for 36 years. I had the surgery after we were married. I used to go around and help people, but now they won't let you do that with out a BS degree.

I have 18 inches of bowel left. Get along good now. I was on tpn for 4 years, until they tried tincture of opium. It works well enough to slow the bowel down that I could get off iv's. My weight is maintaining.

Has anyone out there come up with any good sinus medication. Most of what works disolves in the large intestine. Since I don't have one the medication comes through whole. Infact the printing is still on it.

Let me know. Thanks

Name: Colleen Pentecost
Email: keithpentecost@msn.com
Country:White Rock, B.C. Canada
Surgery: Ileostomy
IBD: CD
More Info: I am a wife and mother of two boys(11 and 15). I had my surgery in April of '95. I've noticed that many of the women on this website have given names to the "little fella", (interesting that most have been given male names). My family and I have affectionately named my ostomy friend "Frederick" (why, I'm not sure). He seems to enjoy embarrassing me by vocalizing his opinion on every subject! If anyone out there knows of a way to keep him from being heard when his opinion is not wanted, please feel free to contact me.

Name: Cherie
Email: jmaleno@yahoo.com
Age: 41
Country: USA
Surgery: Ileostomy
IBD: CD
More Info: Had first surgery Jan 98. And my final surgery in June on my birthday. It has not been easy. Just to talk to others would be nice.

Name: Hope Howe
Email: Hope_Howe@hotmail.com
Surgery:Ileostomy
IBD:?????
More Info: I have had my ostomies since I was about 2years old. It's not easy having to live with these ostomies. I have had so many surgeries to help them to stick correctly. Don't give up!

Name: Tammie Allison
Email: allison4@eisa.net.au
Surgery:Ileostomy
IBD:CD
More Info: I am married and a mother of two young children. I was diagnosed with Crohn's in 1991 and had my ileostomy performed in 1993. Anyone wishing to contact me can, me email address is allison4@eisa.net.au. I would love to hear from anyone.

Name: Janice Lea Wilkes
Email: janicelea@angelfire.com or janicelea@yahoo.com
Surgery:Ileostomy
IBD:CD
More Info: I had my colon and 20 cm of my small intestine removed. Now I have an ileostomy due to Crohn's Disease.Another thing I am feeling all alone in dealing with all of this. Please feel free to email me. Thanx.

Name: Teresa Marshall
Email: Teresa, Please email me your email address at ssandells@bigfoot.com
Surgery:Ileostomy
IBD:????????
More Info: Had my surgery 20 years ago with no problems until this past year. I was just put on Prednisone due to inflamation from restricted passage way with the intestine. Tried the cortifoam first with no success. I originally thought I had UC 20 yrs ago and had no further worries but since a recent sigmoidoscopy my new doc says its crohns. I'm scared and don't want to go through all the trauma of 20 yrs ago. 3 mos in hospital.

Anyone with alternate health ideas or experience in post operative crohns?

Name: Peter Alldridge
Email: peteralldridge@msn.com
Surgery:Ileostomy
IBD:????????
More Info: I had the op 3 years ago and have been in good health ever since. I suffered prior to the op for about 18 months, to 2 years and was suddenly rushed in to hospital when my colon ruptured and I developed septicaemia. I was in intensive care for about 4 weeks. I was told afterwards that it was touch and go and I nearly died.

I cope very well with my "bag" etc and lead a normal life.

Name: Andy Andrews
Email: maa@southern-air.com
Age: 38
Country: USA
Surgery:Ileostomy
IBD:????????

Name: Paul Dawson
Email: hotxbun@currantbun.com
Surgery:Ileostomy
IBD: UC
More Info: I would love to hear from any ex-sufferers who now love life and live life to the full.

One of my great pleasures in life is helping people come to terms with their stomas and help them get on with their lives. If I can use my un-pleasant experiences to help others, then I am a rich man.

Drop me a line :¬)

Name: Paul
Email: pf318@juno.com
Surgery:Ileostomy
IBD: UC
More Info: I had ulcerative colitis for 14 years and it finally flared up so bad, I had to have the colon removed and am now an ileostomate. I seem to be doing better with it as time goes by and am thankful for sites like this on the web. Would like to talk to anyone who wants to.
Also I have a site for ostomates which is http://members.xoom.com/pf318/ileostomy.html
Stop by and visit and please sign my guestbook so I will know you were there.
Thanks Paul

Name: Chris Linn
Email: BLinn410@aol.com
Surgery:Anticipating an ileostomy or a BCIR
More Info: Want to know about the Pros and Cons of the BCIR and the exterior bag ileostomy.

Name: Les
Email: Les, Please send me your email address and info on what type of surgery you've had so others can respond to you. Thanks. ...Shaz
More Info: I would like information on sex problems and how to cope with the opposite sex.

Name: Ilene Shapiro
Email: PebblesC@aol.com
Surgery: ileostomy
IBD: CD
More Info: I have had Crohn's Disease for 15 years. I had a temporary Ileostomy to divert the stool away from the rectum due to fistula with abscess. I am having my colon and rectum removed in August '99.

Name: Terry
Email: I can be contacted at Carrielcat@aol.com or Step1@aol.com. Either will get to me.
Surgery: ileostomy
IBD: CD
More Info: I am female. I had my original surgery done in 1980 at age 20. I had an ileostomy done in the fall of 1980 for Crohn's. Then in 1988 had two more surgeries to remove abcesses and also to have my stoma redone as it had herniated. I think it had because I had my daughter in January of that year. I had a difficult delivery. Anyway, since then have been fine. I haven't been on any meds since my original surgery. I do have problems with my joints, most especially my knees, and am finally considering Celebrex or some other form of relief.

Great site. Thanks so much for taking the time to do it.

Name: Juana Arias
Email: omendi@jal1.telmex.net.mx
Surgery: diverticulitis
IBD: CD
More Info: I had a ileostomy by diverticulitis on Apr 12 1999 and I have not found anyone with the same, i would like to know about food, time of recovery, pain, what is to be expected, etc

Name: Tom Hartsock
Email: seahagg@usa.net
ICQ: 26955394
Surgery: ileostomy
IBD: CD
More Info: i have a couple of questions, first what in the world is irrigation - haven't a clue, second, has anyone out there ever had blisters under the tape of the wafer that just won't heal,if so could you email me at seahagg@usa.net to give me some much needed advice, so i can stop suffering with this. I've had this ileostomy for 11 years now and this is the first time I've ever experienced anything like this, getting so frustrated.