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If you would like to add your name to this contact list, please
fill in your details here.
Name: Coraine Carney
Email: coraine.carney@talk21.com
Where from: Sheffield. UK
Surgery: ileostomy(15yrs)
IBD: CD 20+ yrs.
More Info: I have had crohn's since the age of 12 but diagnosed at 19, I've had 'Charlie' since I was 22. I've had many surgeries (30+)through related problems and at the moment I'm having a bad flare-up but it's only pain as I keep telling my husband and son. I'm a bit of a clown most of the time and don't call myself an ostomist I call myself a 'baggie' (as in star treks,trekkies). I would love to hear from anyone and everyone I have lots of interests and love people.By the way I live in Sheffield England, yes I'm a Yorkshire lass but we're not all like 'The Full Monty'.
love to all
Coraine.
Name: Clair
Email: clairann@gte.net
Surgery: Ileostomy
IBD: CD
More Info: Hello, my first contact with other ostomates. Have had GEORGE for over 20 years. I would like to meet others with same and get info on care of older ostomies. I have lived a good productive life since my surgery and would be dead without it. All responses welcome.
Name: Steve Strizic
Email: sstriz@earthlink.net
Surgery: Ileostomy
More Info: Shaz,
You are a very talented and dedicated person. I have seen your name around the web so I thought I 'd say hello.I had my surgery 10 years ago and like you I feel a need to reach out to others. I am involved with the United Ostomy Association as a Chapter Coordinator and I am on the National Board of Directors. I also voluteer for the Crohn's and Colitis Foundation of America and am on the Washington State chapters Board of Trustees. My third organization I work with is the American Cancer Society. If I can be of any help, please let me know. Keep on Keepin' on!
Name: Mary Campos
Email: mcampos@intertek.net
Surgery: Ileostomy
IBD: Had UC
More Info: I had my Ileostomy done in Feb 98. All is well and I'm greatful. If you would like to talk about Ileostomies or other things, please e-mail me and visit my homepage
for areas that interest you as well. Take Care and Best of Health to All.
Name: Lindsay
Email: Lhenderson@mailcity.com
Surgery: Ileostomy
More Info: I've had crohns since I was 6 years old but it didn't
get diagnosed until I was 10. Since then I have been
in and out of the hospital many times and on almost
every medication for crohns, but I really didn't want
to have ostomy surgery even though the dr's kept
telling me that it would make me feel better.
Then, in december of 98 I got really sick and
didn't have a choice about surgery, so, now I'm trying
to learn more about it since this is all very new. I'd
love to hear from anyone in a similar situation.
Name: Tezz (Therése)
Email: tezz_myz@hotmail.com
Surgery: Ileostomy
More Info: Iīm doing quite
well since I had my surgery done...My ostomy hasnīt been a problem
in any other situations than bathing..because I just canīt seem to
get a bandage that will stick on for more than half an hour.
Sad , because I love svimming and bathing..
My greatest horror before surgery I think
was "boyfriends"..
But I canīt say Iīve had a
problem with getting them , finding them or keeping them any more than
I had before...
Only difference is Iīm getting all
the "good guys" now , those who really care about You as a person...
*Opppsss*
Gotta go now my class starts in 2minutes...
*Thatīs me...*
One feet up always , and thanks to my
ostomy I can keep up with it..=)
Please feel free to Email me at any time,
but I must tell Ya all now that Iīll only have this Email adress
until I finish school , witch is in 6/6 .
But until then......
//Seeeeeee Youuuuuuuuuu\\
Name: Consuelo Justo
Email: sohail@retemail.es
Country: Spain
IBD: UC
Surgery: Ileostomy
Name: Sonia
Email: SMA1LUV@AOL.COM
Country: Pennsylvania, USA
Age: 31
More Info: Hi, I have had my ostomy
since birth... 31 yrs now, and I am ashamed to say, I don't know really
anything about it..I don't live a normal live, I have let this get the
best of me. But! something has got to change, I drink alot... I smoke marijuana...
all I think to try and forget about this... I am alone, and I really don't
have anywhere to turn..I don't know what else to do... I can't go through
another year like this, and something has got to change... hopefully by
doing writing .... something will happen...I know I can't be the only person
like this...I just know im not...why was I raised like I was...please help
Thanks!!!
Name: Paul Simpson
Email: paulsimpson5@hotmail.com
More Info:I had my Op in on April
1st 1998, so I'm new to all this. I had three op's because I had bleeding
and after two weeks adhesions (small bowel sticking to itself). All in
all I am happy to be alive! I am a Christian and would especially like
to meet other christians in my situation, but all are welcome.
Name: Jeff Davis
Email: jeffd37@hotmail.com
ICQ: 7613133
Surgery: Ileostomy
IBD: Colon Cancer
More Info:My name is Jeff Davis
and I have had my ostomy for three years now. I am now able to go backpacking
because of it. And I would do it over again. I got mine because of colon
cancer that runs through my family. I would love to talk to anyone that
has an ileostomy or any ostomy. I also help out on the #cancer channel
on chatnet on mIRC. You can also get me on icq #7613133.
Name: Dana Hawkins-Lollis
Email: dlollisangel1@yahoo.com
Surgery: Ileostomy (Oct 21, 1998)
IBD: Spina Bifida
Name: Ian Comeau
Email: icomeau@bigfoot.com
Age: 27
Surgery: Ileostomy
IBD: UC
More Info:I'm 27 now, but I've
had mine since I was nine. The only thing that having an ostomy has prevented
me from doing was karate. Other that that, I can't complain about life.
Name: Gayle Stowe
Email: gstowe@bfm.bm
Age: 39
Country: Bermuda
IBD: Ulcerative Colitis
Surgery: Ileostomy
Medication: Indocid
More Info: In 1986 I was diagnosed
with a condition called Ankylosing Spondylitis (AS) which affects the major
joints of my body, especially the spine. With this come complications,
such as IBD and uveitis (inflammation of the eye). I had a swift, but severe
attack of UC in 1989 which resulted in my acquiring my stoma, "Willie"
from an ileostomy. Since then I have also had a hip replacement, further
surgery due to adhesions in the small intestine and I am now about to undergo
removal of a cataract that was caused by treatment of the uveitis! I would
be interested in hearing from any ostomates, anyone who has IBD, uveitis
or AS.
Name: Rudy
Email: DRudzin@egii.com
Surgery: Ileostomy
IBD: UC
More Info: Surgery 26 years ago.
Physically recovered in 3 months. Mentally it took 15 years. Willing to
help any and all people who need. Belong to a young ostomate group, with
men & women, married and single who are also willing to help. E-mail
me for any other info, including my story, medications I was on, and dealing
with life i.e. sports,work,sex and anything else.
Name: Anne
Name:Jeanne Pulver
Name: Linda
Name: Liesel Whtye
Name: Amanda Brown
Name: Candy Moran
Name: Anne Murphy
Name: Sean
Name: Mindy Lauchle
Name: Sonia
Name: Tom Starks
Name: Linda D
Name: Michael Nash
Name: Connie Thompson
Name: Sue Bowen
Email: None given (Anne, please
contact me with email address, thanks - Shaz)
IBD: CD
Surgery: Ileostomy
More Info: Hi my name is Anne and
I have had an ileostomy since I was 35 years old ( I am now 48). I suffered
for years from Crohn's and was in and out of hospitals and on numerous
drugs for the disease all during my 20's. At one time they had me on 22
pills a day and I was still sick and suffering also from side affects from
all the medications. Since the surgery, I have not been on any such drugs
and have resumed a normal and active life. This is not to say I didn't
suffer through a major adjustment after the surgery. I was VERY vain about
my appearance and my new body image didn't please me at all. However, after
I started feeling good and was able to live my life free from that horrible
disease, I didn't worry so much about it--I just learned some tricks to
deal with it. My doctor said I wear the tightest jeans he has ever seen
and no one can tell I wear an appliance! Anyone who would like to talk
to me about Crohn's or an ileostomy, please feel free to contact me with
questions or just to chat. I have many
stories I can share with you!
Email: jpulver@tconl.com
IBD: CD
Surgery: Ileostomy
More Info: I am a divorced mom
of two boys, one is 18 and at Washington U. in St. Louis, Missouri. The
other is 10 and in 4th grade. I have had diagnosed Crohn's Disease for
25 yrs (since I was 19). I am the only Director in Nebraska for a great
archival scrapbook company known as Creative Memories. I work out of my
home. Interestingly enough, I told my 10 yr. old that when I reach Senior
Director status, I will treat him to a trip to Australia. Maybe we will
come visit you, Shaz! (Feel free - anytime! - Shaz)
I have a great sense of humor which has
gotten me through many rough times. My gastroent. said he had never seen
anyone with as bad a case of Crohn's as I have go so long without an ileo.
I am astounded by you young people who seem to cope so well with your stomas,
etc. I find it tough after 5 months at my ripe old age. I love photos and
memerabilia and that's why I work for CM. I hate to cook- half the time
I couldn't eat, anyway. I can eat fine, now, but am not sure for how long.
I really thought that my troubles with Crohn's were over after the ileo,
but have been informed that I may be in for more problems. We will see.
Email: lilred@telusplanet.net
IBD: Take your pick :)
Surgery: Ileostomy
Email: whyte@tig.com.au
Country: Australia
Surgery: ileostomy
More Info: I am married, with a
14 month old daughter (I had her 5 months before the ileostomy surgery).
I work part-time in eye research.
Email: abrown@commhospindy.org
Country: USA
Surgery: ileostomy
IBD: Ulcerative Colitis
Medication: Axid, Amnitriptolyne
More Info: I've had my ostomy since
I was 6 years old so I guess I am an "old timer'. I haven't met anyone
near my age who has had this, so I welcome anyone who wants to talk. I'm
kind of lonely in the country side of Indiana!
Email: candy.moran@virgin.net
Country: England
Age: 42
Surgery: Ileostomy
IBD: UC
More Info: I had my ileostomy in
Feb '98, so it is almost brand spanking new!! I'd just like to hear peoples
experiences with life with the bag!!
Get in touch and tell me about yourselves!!
Email: acmurph@bigpond.com
Country: Australia
Surgery: Initially a J Pouch but
had to be converted to an ileostomy
IBD: UC
More Info: Happy to talk to anyone
who wants to know which road I have walked down and what has happened.
Different experiences re-told can give a variety of perspectives. I hope
that my experiences can help someone/anyone who needs to walk down that
same road to do so more easily.
Email: sft7599@aol.com
Surgery: Ileostomy
IBD: Crohn's
Email: lauchle@chicago.avenew.com
Surgery: Ileostomy
IBD: CD
More Info: I am very active in
aquatic and other sports and would like to hear any helpful hints on adhesive
maintenance. It will be a year in August 1998 since my surgery so I guess
you could say I'm still in the learning process--any little suggestion
would be a lot of help. Thanks for the great web page!!
Email: sma0860@aol.com
Surgery: Ileostomy and Colostomy
More Info: I am so glad to find
other ostomates... I have had my ostomies since birth due to defects. I
guess everything was always explained to my parents/grand-parents.. and
really never to me...Anyway, I am 31 now, waking up I guess!!!... and trying
to learn something about myself....I'm willing to talk to anyone at all....
I have basically been alone with this for 31yrs... My family does not talk
about it, none of my friends know..its really a lonely feeling... Anyway,
I am a huge sports fan, I love the Pitts. Steelers.. I play basketball,
and volleyball...I have no children... I am single.. and would love to
meet other male ostomates... (i have a pic LOL)...I love kids..and would
love to talk to any children with ostomies...
Email: tstarks@concentric.net
Surgery: Ileostomy
IBD: UC
More Info: I had a "temporary"
ileostomy upon the total removal of my colon, due to UC, in 1990. Then
the doctors decided cancer was around the corner, so they cut out the "stump"
in 1991, so here I am: an "8 year old" permanent ileostomate. I have been
through the ringer with everything from skin diseases to hernias, and I
have a few war stories to share, and would be happy to with anyone who
would like to have another person's perspective.
Email: darned@comfortable.com
ICQ Contact Number: 3424114
Country: Portsmouth, VA USA
Surgery: first colostomy, then
ileostomy
IBD: Crohn's Disease
Medications: codiene sulfate to
lower motility of short bowel
More Info: I have had CD since
the age of 14.....had several bowel resections and had recto-vaginal fistulae.....had
colostomy first in 1975.....condition worsened and in 1979 I had ileostomy
surgery. In all I had 10 major abdominal surgeries. I now have to use codiene
sulfate to keep the motility of the short small intestine, however I feel
that I have won the war. I am 58 years old and feel good!! I would be glad
to talk to others who are going through this battle. You can win!!
Email: Crusher218@aol.com
Surgery: Ileostomy
More Info: I am a firefighter with
a wife and three kids. Send e-mail if you want to talk.
Email: connie@netxn.com
Surgery: 8 year old daughter has
ileostomy
IBD: Neuronal Intestinal Dysplasia
More Info: I am the mother of an
8 year old with an ileostomy. The ileostomy has given my daughter a normal
life. The ileostomy has given her health and kept her out of the hospital.
For parents who are faced with the decision of choosing an ostomy, I can
honestly say, the ostomy gave my daughter a life.
Email: superdew@neo.Irun.com
Surgery: Ileostomy
IBD: CD