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If you would like to add your name to this contact list, please go here.
Name: Joan
Email: CARUGAMA@AOL.COM
Age: 65
Country: Jeffersonville, USA
Surgery: Colostomy
IBD: Cancer
More Info: I have had my colostomy for almost 7 years.I had cancer of the colon and rectum. I irrigate every other day. The whole idea of having to have the colostomy blew my mine. I thought I would never leave my house. Now after all the years it is just part of my everyday life. Sometimes I do get frustrated, but, if having it means being here, it is all worth it. I am
cancer free, and never had to have radiation, chemo or medication. I am just so happy to be alive. I would love to hear from some colostomy buddies.
Name: Belinda Kinmon
Email: belmose49@ky.netzero.net
Age: 51
Country: Verona, Kentucky, USA
Surgery: Colostomy
IBD: Cancer
More Info: Colostomy due to colo-rectal cancer.
Surgery June 1999.
Worst thing about surgery: having rectum removed. It has been 2 years and still can't sit comfortably.
Name: Nathan
Email: VegasPlay@lvcm.com
Age: 38
Country: Las Vegas, USA
Surgery: Colostomy
IBD: CD
More Info: I'm a GWM in a happy, monogamous 8 year relationship. A member of GLOContact (Gay & Lesbian Ostomates). Had my surgery when I was 17. I travel alot so maybe I'll be in your town sometime soon. Feel free to email me.
Name: Sean Klagstad
Email: seancrackhouse@hotmail.com
Age: 28
Country: Richmond, In, USA
Surgery: Colostomy
Name: Helen Profitt
Email: hprofitt@excite.com
Age: 48
Country: Columbus, OH USA
Surgery: Colostomy
IBD: Cancer
More Info: I have had my colostomy since 12-13-00. I am interested in irrigation but haven't tried it yet. I'd be happy to communicate with other colostomates!
Name: Amanda
Email: userlo6887@.aol.com
Age: 17
Country: Tampa, Florida, USA
Surgery: Colostomy
More Info: I'm 17 with a colostomy. I had it since birth and every day is like facing new challenges. Looking for boys and girls my age group to chat.
Name: George Vardanyan
Email: vardanyan22@hotmail.com
Age: 50
Country: Wevelgem, Belgium
Surgery: Colostomy
IBD: Cancer
More Info: Since May 1999 had 4 surgeries. After the last one since August 2000 I am a colostomy owner.
Name: Susan
Email: goddess@zeal.net
Age: 23
Country: Austin, TX... well, almost
ICQ: 13064813
Surgery: Colostomy
IBD: CD
More Info: Hi. I was diagnosed with Crohn's when I was 12. In 1993, I had a bowel resection. They used titanium staples to close my wound, however left me open to heal.. ugh! Nowadays, my titanium staples have surfaced and are about to puncture my skin. FUN.
Currently (and since 1997), I have been having a flare in my rectum. Actually, the lowest part of the rectum...the part that counts the most. :\ I have a severe, "rare" rectal stricture and SEVERE scarring. I also have about 4-5 skin tags clumped together outside my bum-hole. I also have 3 fissures right now. I have been on the medicated enemas, Remicade, and every other "wonder" drug, but nothing has helped. Currently, I have been getting rectally dilated about once a month. Saw my doctor last week (2/16/01) and he said to start considering colostomy. They have said this before, but it had always been avoided. This time, I think it's going to have to happen. The scarring is just so bad, I don't think there's any other way to fix it. I plan on trying to get a definite second opinion at one of the famed clinics, but haven't set up an appointment...yet.
Please feel free to write me. I do have some apprehensions about getting a colostomy, but if it's for the best, then I guess it has to happen. Those of you who have Crohn's with colostomies, do you ever irrigate and cap off for those intimate moments? Just curious. BTW, we're (my husband, Isaac & I) hoping to try to get pregnant next year. We'll see what happens. Thanks for your support.
Name: Ken(aka Ucci)
Email: ucci_1@hotmail.com
Age: 62
Country: Coronet Bay, Australia
ICQ: 58697475
Surgery: Colostomy
IBD: Cancer
More Info: Had my resection for lower bowel cancer in 1996 and since then have had a pretty trouble free run. Have a permanent stoma and lead a 'normal' life. Been very lucky, I guess.
Name: Kimberly Kidd
Email: garde69@hotmail.com
Age: 35
Country: Michigan, USA
ICQ: 107317510
Surgery: Colostomy
IBD: Cancer
More Info: I was diagnosed with color/rectal cancer in 1993 it has been 8 years I have lived with it. I went through radiation and chemotherapy. I have had 4 resections and the removal of the rectum. If I can help anyone answer questions please feel free to contact me or just to chat. Cheer up I am still able to wear a bikini and just about anything I want.
Name: Cheryl
Email: cheryltaylor4@home.com
Age: 48
Country: Virginia Beach VA, USA
Surgery: Colostomy
IBD: Cancer and recurrent cervical cancer
More Info: Miami Pouch urinary diversion. Recurrent cervical cancer in which treatment included in addition to a radical hysterectomy, the removal of my bladder, most of my colon and some other various parts. I now have a Miami Pouch which I catheterize 5 times a day in addition to a colostomy bag which needs to be emptied but I survived the cancer!
Name: Adrianna
Email: DGRAHAM945@gateway.net
Age: 2
Surgery: Colostomy
IBD: Hirschsprungs Disease
Name: Lynne
Email: lynnegreen@ol.com
Age: 34
Country: UK
Surgery: Colostomy
IBD: CD
More Info: Please help if you can I have had my ostomy since 11th december 2000 and I am still a little scared of it any tips would be great.
Name: Paul Hampson
Email: paul.geaf@usa.net
Age: 27
Country: UK-south
Surgery: Colostomy
IBD: CD
More Info: Since the surgery(6 months ago), I have been wondering how to bring up the subject when meeting women..
I decided there must be lots of women out there who have the same thoughts?!
So I am now looking for nice ladies to get in touch!
I don't mind or care about stomas seeing as I have one myself, so if you are lonely, bored, need cheering up, whatever, just write and we'll have some fun.
Name: Yancey Del Rio
Email: ydr12749@aol.com
Age: 51
Country: Alabama, USA
Surgery: Colostomy
IBD: Cancer
More Info: Had surgery for colo-rectal cancer about a year ago and have a permanent colostomy. Would love to talk with someone in simular circumstances. I am a female who used to date, but now I'm not so sure.
Name: Nicole
Email: prairiebreez@foggy.net
Age: 29
Country: California, USA
Surgery: Colostomy
IBD: Cancer
More Info: I would love to correspond with other cancer survivors. I was diagnosed with rectal cancer in Nov. 99. I have a 2 year old son. I would love to be a support for any one who has any questions about living with an ostomy or about cancer treatments, ect...I irrigate, and I live a full, active, happy life!
Name: Tara
Email: AutumnsFallGirl@aol.com
Age: 30
Country: New York, USA
Surgery: Colostomy
IBD: Colon Cancer
More Info: Hello Everyone,
I don't know about anyone else, but I am totally dazed with the fact that I have a colostomy bag. I have been recently diagnosed with colon cancer (July 3rd 2000)and I have so many questions about living with this bag on me, let alone the after effects of chemotherapy.
I would definitely like to hear from those out there that are dating (like me) so hopefully someone can answer some of the more delicate questions I have :).
Also, if anyone has any questions to ask me or just need some to talk to please feel free...I know I really needed someone to talk to when I was diagnosed.
Name: Julie
Email: oasischic25@hotmail.com
Age: 18
Country: USA
Surgery: Colostomy
IBD: CD
More Info: hey all. Anyone that has my same thing plzzz email me. I want to talk to someone that has this to so i dont feel so alone. my aol instance messenger name is Irishprincess199. I'm on all the time, message me :)
Name: Carol (Cazz Ann)
Email: marto1@ihug.com.au
Age: 51
Country: Australia
ICQ: 63697872
Surgery: Colostomy
IBD: Cancer
More Info: After being unfortunate to have contracted cancer at 32 which resulted in a colostomy I am now very well 19 years later. I manage by irrigating everyday and all I need is a stoma cap to get me through the day. I enjoy a full and very active life, work full time as a Secretary and have no problems at all. Please feel free to e-mail me if there is any way I can be of help.
Name: Jeannie Lambert
Email: thefirms@aol.com
Age: 38
Country: Gainesville,Fl USA
Surgery: colostomy
IBD: CD
More Info: Surgery date was 2 of March 2000. New patient with no idea how to adjust. I need discrete help as all my friends do not know yet. In some odd way I feel better (physically) than I have in years...now how do I get my mental health to catch up?
Name: Dorothy
Email: piecuch@uswest.net
Age:49
Country:USA
IBD:IBS, incontinence
Surgery:Colostomy
More Info: I need to decide what to do. Colostomy is suggested.
I'm either reclusive at home or go out to someone's
bathroom!
Rectal surgery failed, apparently there
is nerve/muscle damage from birthing. I'm more
concerned with the after effects than surgery itself.
I've had so many surgeries(from head to toe)...
How do you dress - special hints/tricks so bag
isn't obvious? Bathing suits? Sex? Seems like it
would be totally gross for the significant other?
(My "saint" has already adjusted to double
mastectomy) What about recovery time? How long
to adapt to procedures? Cost of supplies? What
complications, immediate and down the road?
Name:Sandee Morrill
Email: Sandee52@mindless.com
Age:47
Country:Twain Harte, Calif.
IBD:CD
Surgery:Colostomy
More Info: After having my colostomy in April of 1999, I
was looking forward to a fuller..happier and healthier life. Unfortunately that has not happened. I've had a lot of problems since that have been a discouragement. A week after the ostomy my rectum (or what was) came open and after
months of different treatments I had to go have surgery to "sew me back up". A week after that another place (above the new sewn site) just split open. It has been quite distressful to walk around with an open and tender "bottom" for months
on end. My surgeon informed me that when the rectum was removed all of the crohns wasn't as the lab work came back positive for crohns. Now
I am having MAJOR symptoms again..blood work does not look good and it looks as though I am back to
square one? I knew that I had a 10-30% chance of the disease returning BUT I didn't expect this!
Name:Mohamed
Email: mohamedb@yahoo.com
Age:27
Country: Dubai, United Arab Emirates
IBD:Cancer
Surgery:Colostomy
More Info:Ok, I don't have a colostomy, but my father does. He is having some tough time and me also. When the doctors first told me about it, I declined and took my father to another country hoping that it will not be needed. But God wanted what is the best for him, and I thank him for anything that comes.
This site has helped me helping my father. I would really need your support, so please feel free to email me.
Name:Girish Bhat
Email: girish_bhat98@yahoo.com
Age:32
Country: Saudi Arabia
IBD:Cancer
Surgery: Colostomy
Name:Alice
Email: alicemarie@jps.net
Age:46
Country: Fair Oaks, CA 95628
IBD:SLE (Lupus)
Surgery: Had a Colostomy
More Info: I had Colostomy first and 6 years later had it changed to an Ileostomy.
Name:Darryl Holland
Email: DarrylHolland@webtv.net
Age:46
Country:New York City
IBD: UC
Surgery: Colostomy
More Info: I am looking forward to talking to and getting in touch with younger women (over 30?) who are interested in sharing notes and perhaps seeing if we are compatible. I live in New York, work on Wall Street, and am a 46 year old single male (never married). I am post op colon removal for ulcerative colitis since I was 12 years old, and also due to colon cancer (now cancer FREE).
Name:Michael Thompson
Email: larcanus@hotmail.com
Age:17
Country:USA
IBD: UC
Surgery: Colostomy
More Info: Got surgery on April 1st, 1999.
Name:Susan Tuck
Email: TuckS@dewynters.com
Surgery: colostomy
IBD: CD
More Info: I have just been diagnosed with crohns after a failed sphincter repair. My colostomy will be made permament removing the rectum in December. Willing to correspond with anyone. Helps to know I am not alone in having one of these.
Name:Susan D. St. Jon
Email: stj2trvl@gte.net
Surgery: colostomy
IBD: ???
More Info:Hi,
Does anybody know why the BCIR is not recommended for those with colostomy only those with ileostomy?
Have my colostomy since 1970 (28 then and 56 now). After all these years am real tired of irrigating daily and sometimes twice daily. It would seem that converting to the BCIR would be easier as I get older.
Do you have any knowledge on this subject?
Name:Kevin
Email: Kevin, please contact me at ssandells@bigfoot.com and let me know your email address so others may contact you. Also please let me know how old you are seeing as you want others around your age to contact you. Thanks - Shaz
Surgery: colostomy
IBD: ????
More Info:Hi, I am looking to chat with anyone kind of my age, who has a colostomy, or wears diapers. I have questions about what other people do about having a colostomy and wearing diapers.
Name:Suzanne Seeman
Email: slseeman@hotmail.com
Surgery: colostomy
IBD: Cancer
More Info:On April 7, l999 I had surgery to remove my rectum and anus and to create a colostomy. This was necessary due to a diagnosis of cancer. The cancer did not penetrate the rectal wall and I did not have to have chemo or radiation. I am doing well with my colostomy - I irrigate daily and wear only a stoma cap to work. I am a L.I.S.W. and my job includes providing grief counseling for clients. Boy - I am much better at this now, having had more experience in the trenches.
Name:Joop Willemsen
Email: jgmwill@gironet.nl
Country: Holland
Surgery: colostomy
IBD: Cancer
More Info:I'd like to correspond with everyone. I'm 43 years and live in Holland. Married, no kids. bye now !
Name: Kendra
Email: Chelle1112@aol.com
Surgery: colostomy
More Info: I recently had surgery to remove my rectum in July of 98. I was placed with a permanent colostomy. I had had one before at the age of 12, but it was only temporary. I feel great right now. I dont have to stay in the bathroom all the time. I am more active now than ever before. I am so glad that I chose to have the surgery.
Name: Ginger Harper
Email: WsTxFine@aol.com
Country: USA,Texas to be more exact!
Age: 34
Surgery: colostomy
IBD: Evacuation Disorder...My Bowels just stopped working!
More Info: I had 18 inches of my colon removed in May of 1997 at that time I had a rectal prolapse.
and a twist in my colon...After about 4 months I started having problems again and in February of 1998 my bowels stopped all together.. After several Doctors, and that meant alot of trips out of town since I live in West Texas I returned home and had my original Dr. do my Surgery on July 7, 1998. And Boy am I glad!!!!!
I was at home and actually cooking for a Ostomy club meeting 10 days later...Believe me there is nothing I can not do now that I did not do before...Somethings better!!!! I am very active in our Ostomy Club here and hope I am doing something to help others...at least I think I am...Email me if you would just like to talk or if I can be of help...
Name: Melynda Parsons
Email: parsons@silkspin.net
Surgery: Thinking about a colostomy.
More Info: I am sick and tired of being sick and tired! At first I was nervous about any surgery but now I'm actually EXCITED!!
Name: Christine
Email:CMaxw96186@aol.com
Country: California, USA
Surgery: Numerous resections and a colostomy
IBD: Diverticulitis
Age: 49
More Info: I recently underwent my 4th surgery for diverticulitis. I had my 1st colostomy when I was 41 due to a rupture of my colon from diverticulitis. It was reversed 10 months later. That didn't work too well.I had numerous attacks over the years and continued to lose large portions of my colon until I ultimately had about 2 feet remaining. This last surgery was initially to install an ileostomy, but the surgeon was unable to do so, as I had so many adhesions that my abdomen was "frozen". The adhesions had grown together. UGH! So, hence the colostomy and fistula. The fistula isn't too bad. Just drains and is a bit bothersome at times. It's amazing what people can adjust to!
Name: Sonia
Email: sma0860@aol.com
Surgery: Ileostomy and Colostomy
More Info: I am so glad to find other ostomates... I have had my ostomies since birth due to defects. I guess everything was always explained to my parents/grand-parents.. and really never to me...Anyway, I am 31 now, waking up I guess!!!... and trying to learn something about myself....I'm willing to talk to anyone at all.... I have basically been alone with this for 31yrs... My family does not talk about it, none of my friends know..its really a lonely feeling... Anyway, I am a huge sports fan, I love the Pitts. Steelers.. I play basketball, and volleyball...I have no children... I am single.. and would love to meet other male ostomates... (i have a pic LOL)...I love kids..and would love to talk to any children with ostomies...
Name: Linda D
Email: darned@comfortable.com
ICQ Contact Number: 3424114
Country: Portsmouth, VA USA
Surgery: first colostomy, then ileostomy
IBD: Crohn's Disease
Medications: codiene sulfate to lower motility of short bowel
More Info: I have had CD since the age of 14.....had several bowel resections and had recto-vaginal fistulae.....had colostomy first in 1975.....condition worsened and in 1979 I had ileostomy surgery. In all I had 10 major abdominal surgeries. I now have to use codiene sulfate to keep the motility of the short small intestine , however I feel that I have won the war. I am 58 years old and feel good!! I would be glad to talk to others who are going through this battle. You can win!!
Name: Kosky (aka Tony)
Email: cassie@globalnet.co.uk
ICQ Contact Number: 11619386
Surgery: Colostomy
IBD: Rectal cancer
Country: Hunstanton, England
More Info: 5 children, Restaurant Manager. Colostomy 4 years due to rectal cancer. Irrigate daily, would be pleased to pass on advice to anyone considering Irrigation.