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If you would like to add your name to this contact list, please go here.
Name: Sammi
Email: sammij2@hotmail.com
Age: 43
Country: Seattle, Washington,USA
Surgery: BCIR
IBD: UC
More Info: I had my Ileostomy in 1996, then had my BCIR in December of 1999....what freedom I have now, my life is brand new now...I would love to talk to anyone that wants to talk...
Name: Jocelyn Moffatt
Email: hocewoman@htmail.com
Age: 28
Country: London, Canada
Surgery: BCIR
IBD: UC
More Info: I had an ileostomy for three years. I finally converted to the BCIR. What a difference. I'm very happy with my decision and I highly recommend it. Anyone with questions, feel free to email me!
Name: Renay Jarrell
Email: rjarrell@aol.com
Age: 42
Country: West Virginia, USA
Surgery: BCIR
IBD: UC
More Info: Very Happy with my BCIR-willing to answer any questions.
Name: Dennis Forbes
Email: dennis.forbes@bmts.com
Age: 54
Country: Owen Sound, Canada
Surgery: BCIR
IBD: UC
More Info: Had BCIR surgery in London, Ontario in October 1998. Had a Brooke Ileostomy for about a year before the BCIR surgery. Very happy with the BCIR.
Name: Dawn Ferguson
Email: ebarmani@aol.com
Age: 24
Country: Michigan,USA
Surgery: BCIR
IBD: Familial Polyps
More Info: I just recently had my conventional ileostomy changed to the BCIR. It was the best thing I ever did. I would love to give anyone information on it.
Name: Teresa Lopez
Email: tlopez@syix.com
Age: 41
Country: California, USA
Surgery: BCIR
IBD: UC
More Info: The BCIR is good for some people but for me it's been hard.
Name: Carolyn
Email: clw724@AOL.COM
Age: 58
Country: Bakersfield, Canada
Surgery: BCIR
IBD: UC
More Info: I had a conversion from an external pouch, which I named Bridgett and wore for 9 years before having it converted to a BCIR in May 1999. I have had quite a few problems with my BCIR, and have given great thought to having it converted back to an external pouch. I am currently having problems with a form of pouchitis, any info would be greatly appreciated.
Name:Lisa
Email: lisaellin@aol.com
Age: 32
Country: USA
Surgery: None yet
IBD: UC
More Info: Just that I am a single 32 year old woman who may need surgery in the future. I just spent 16 days at Mt. Sinai Hosp. in NYC under quite excellent care. I am interested in the BCIR. Currently I am taking cyclosporine, prednisone, asacol, 6MP, rowasa and cortenemas, and a few other assorted goodies! I have a great job, good outlook on life, am optimistic about the future but would like some of my pain to go away! I would be interested in hearing about others' experiences with cyclosporine (and the BCIR).
Name:Susan Kay R.N.
Email: Susan.Kay@bcirostomy.com
Country: St. Petersburg
More Info: I am the nurse that is in charge of the BCIR program at Palms of Pasadena Hospital. I am available if you should have any questions about the procedure.
Name:Merrill Williams
Email: merrit41@aol.com
Age: 42
Country: USA
Surgery: BCIR
IBD: UC
More Info:Had BCIR in '94 and haven't seen a doctor since! Would highly recommend it.
Name:Susan D. St. Jon
Email: stj2trvl@gte.net
Surgery: colostomy
IBD: ???
More Info:Hi,
Does anybody know why the BCIR is not recommended for those with colostomy only those with ileostomy?
Have my colostomy since 1970 (28 then and 56 now). After all these years am real tired of irrigating daily and sometimes twice daily. It would seem that converting to the BCIR would be easier as I get older.
Do you have any knowledge on this subject?
Name: Chris Linn
Email: BLinn410@aol.com
Surgery:Anticipating an ilesotomy or a BCIR
More Info: Want to know about the Pros and Cons of the BCIR and the exterior bag ileostomy.
Name: David Fortner
Email:davenpat@htc.net
More Info: Had my BCIR surgery in 1993. Doing great,more than glad to answer any concerns you may have.
Name: Rita Raleeh
Email:rita@texoma.net
Surgery: BCIR
IBD: UC
More Info: I started having symptoms of UC in March 92, when I was 5 mos pregnant with my daughter. I was diagnosed in July 92, 1 month after she was born. I tried most every conventional and holistic remedy you can think of. Nothing worked except prednisone and I was on it almost constantly. I was terrified of surgery and scheduled it twice and chickened out. Finally in Dec. of 96 I was so miserable I scheduled surgery for Jan. 97. Truly, if I can do surgery, anyone can.
I have had some problems with pouchitis, but found an herbal remedy that works great. Today I feel great and have my life back again (no constant worry about where the next bathroom is!!) Feel free to email me at rita@texoma.net, if you'd like to know more about the BCIR, or my experience.